Director of Policy Advocacy

The Missouri Developmental Disabilities Council (MODDC) stands as a pivotal entity in promoting and implementing the Developmental Disabilities (DD) Act across Missouri. As a federally funded, governor-appointed council, MODDC's mission is to ensure that individuals with developmental disabilities (DD) and their families have access to the resources and support they need to thrive.

MODDC operates as a nonpartisan partner, working collaboratively with various shareholders to advocate for policies and initiatives that enhance the quality of life for those it serves. Its efforts focus on fostering self-determination and inclusion while centering lived experience as the leader in systems development and change.

Through comprehensive planning and strategic action, MODDC addresses critical issues such as healthcare access, education, employment opportunities, and community inclusion. Their work is vital in creating an inclusive society where everyone, regardless of ability, has the opportunity to lead a fulfilling life.

In essence, MODDC is not just a governing body; it is a catalyst for positive change, driven by the commitment to empower individuals with developmental disabilities and their families.

The Director of Policy Advocacy is critical to policy and advocacy strategies that support the council's dynamic work.

• Directs and supervises the review and analysis of governmental affairs and public policy issues, the development of briefing materials, and the development of recommendations for council action.

• Represents MODDC to the Missouri General Assembly and U.S. Congress, reviews legislation and bill amendments, advises Council members and staff, and assists with administrative rules.

• Educates the public about the capabilities, preferences, and needs of individuals with developmental disabilities and their families, including training in self-advocacy, education of policymakers, and citizen leadership skills.

• Executes timely advocacy and policy communication strategies with statewide shareholders.

• Enhances MODDC social capital through coalition building, cross disability and bi-partisan strategy, and nonpartisan advocacy.

• Craft innovative strategies and approaches to reduce systemic barriers for individuals with DD and their families identified in MODDC’s five-year state plan.

• Develops, coordinates and directs major grants for statewide projects. Provides ongoing monitoring of activities and budgets and evaluates the product for system change.

• Provides project management through the training and support of current and/or future funding applicants, develops proposals, manages contracts, project reports and budgets.

• Coordinates statewide opportunities for individuals with DD and their families to provide information regarding their experience with the DD service system.

• Takes on leadership roles and attends statewide boards, task forces and other groups to influence systems change.

• Provides technical support to MODDC by conducting ongoing training to enhance education and advocacy skills while avoiding real or perceived lobbying or other restrictions related to federal funding or state government.

• Directs risk analysis and advises risk mitigation strategies related to MODDC positions, policy priorities and advocacy efforts.

• Provides technical support to MODDC’s Legislative and Public Policy Committee.

Requires in-state travel for meetings, trainings, and community engagement.

Requires in-person engagement at the Capitol, especially during legislative sessions.

Requires out-of-state travel for conferences, trainings, and advocacy in Washington D.C.

To make a significant impact in this position, there are several core competencies and values that the Director of Policy Advocacy should possess.

• Understanding and Inclusion: A deep understanding of disability history and rights is essential. This foundation helps in aligning with the principles of the Developmental Disabilities Act, which emphasizes lived experience, inclusion, and self-determination. Recognizing these elements ensures that advocacy is both informed and compassionate.

• Effective Communication: Excellent communication skills are vital whether engaging with shareholders, policymakers, or the media. The ability to convey complex ideas in plain, accessible language ensures that all parties, including those with disabilities, can participate fully in discussions and decision-making processes.

• Leadership and Advocacy: Strong leadership skills, combined with persuasive and pragmatic approaches, are necessary for successful policy advocacy. This involves not only leading initiatives but also collaborating and following the leadership of those with disabilities, respecting their experiences and insights.

• Analytical and Problem-Solving Skills: Advocates must be equipped with strong analytical and critical thinking abilities to navigate challenges effectively. This skill set allows for the development of innovative solutions that address the unique needs of the disability community.

• Technological Proficiency: In an increasingly digital world, the ability to use various technologies for both independent and group work is indispensable. This proficiency supports effective time management and enables quick, timely policy decisions and actions.

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• State of Missouri

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